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November 13, 2015 12:26 am
5UNDIAGNOSED (Teaser for feature) By Dr. Katia Moritz, Nicholas Miller and Crystal Shearman; featuring Gina Szajnuk As a fellow Park City resident and undiagnosed, it is an honor...
November 11, 2015 12:29 am
12Since both the NBA Utah Jazz and the National Ability Center (NAC) have been extremely generous to our family, I wanted to share the video my mom captured...
October 17, 2015 4:23 pm
7Hailey Sampsel: Today marks my one year of being sick. My one year of pain, hospital stays, infusions, doctor visits, tears, hope, and love. One year ago, I...
October 16, 2015 11:51 pm
3Greetings from Seattle! My husband, Michael, myself and our beautiful baby boy, Jacob, now have a new place to call home! I still can’t believe it has happened....
October 15, 2015 6:03 pm
6Gina Szajnuk: I have anger every single day for so many different reasons. So, my older brother sent this article to me yesterday. I stopped my busy day because of...
October 13, 2015 12:15 am
8Ava is in complete awe of this picture. If I would have seen this picture show up on Facebook, I would have stopped and clicked on it. I would...
October 11, 2015 12:52 am
5UTAH RARE DISEASE DAY 2016 is coming soon! February 27th & 29th!! Please share and “Like” the Utah Rare Facebook Page to find out more information about our upcoming events!...
October 6, 2015 1:22 am
19Lucy was sent home from school today because she complained that her entire body hurt. When she got home her fever wasn’t very high. However, she continued to...
October 2, 2015 9:16 pm
6Please support the Art For Angels-Art Contest & Silent Auction Happening Now! Art Contest Art for Angels- Art Contest & Silent Auction. We are so excited for this...
September 29, 2015 6:00 pm
4Gina Szajnuk: I am not saying, “Poor Me.“I’m not saying that at all! I’m actually to the point of saying, “Bring it on. Keep it coming.” And, as a friend...