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March 25, 2016 4:09 pm
5Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....
March 23, 2016 5:34 pm
9Dear Hollywood, As a mother of three rare and undiagnosed children and the Co-founder of the Rare & Undiagnosed Network (RUN), thank you for making the movie “Miracles...
January 24, 2016 8:46 pm
6The RARE TEEN PHOTO SHOOT was a HUGE success! Season Atwater, Aware of Angels, is such a talented photographer! Thank you to Angel Benson, Maddie Benson, Julie Jackson, Kristen Packard, Rebecca...
October 15, 2015 6:03 pm
6Gina Szajnuk: I have anger every single day for so many different reasons. So, my older brother sent this article to me yesterday. I stopped my busy day because of...
August 22, 2014 10:10 pm
0The RUN Advisory Board Mission & Vision Raise awareness for families with children afflicted with undiagnosed or rare diagnosed conditions. Urge insurance companies to reimburse genome sequencing in...