Search results for ‘Oskar’
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RUN’s NBA Initiative: Utah Jazz National Anthem Buddies on March 2nd, 2019!
The Utah Jazz honored 32 rare and undiagnosed children on the court as National Anthem Buddies on March 2nd, 2019. Derrick Favors, Rudy Gobert, Joe Ingles and Ricky...
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...
In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk
Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...
Undiagnosed Rare Disease Day on April 29th, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
RUN’s NBA Initiative: Utah Jazz on March 29th!
On March 29th, RUN hosted the Teuscher family for dinner and a pre-game experience. It was a night of smiles, hugs and the Utah Jazz! Learn about August...
RUN Educational Series: Speaking Opportunity
Have you participated in a clinical trial and are open to sharing your experience at a future RUN Educational Series event on clinical trials? If you are a...
2019 RUN’s NBA Initiative #RUNNBA
The Utah Jazz will honor 32 rare and undiagnosed children on the court as National Anthem Buddies on March 2nd, 2019. Derrick Favors, Rudy Gobert, Joe Ingles and...
Undiagnosed Rare Disease Day is April 29, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
HB211 Passed the Utah House Unanimously!
HB211, establishing a Rare Disease Advisory Council, passed the Utah House of Representatives unanimously on Friday, February 15th, 2019! Community members gathered to watch and listen from the...
Goodbye Steve. Fly High!
Today is Stephen “Steve” Mark Trummer’s Celebration of Life. He was born on January 15th, 1957. He died on February 4th, 2019. I cannot believe you are really...