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February 22, 2017 10:20 am
1My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
February 3, 2017 10:15 am
2It has been an emotional few days this week with my trip back to Salt Lake City for the NBA Utah Jazz game against our Milwaukee Bucks. I...
December 21, 2016 11:57 am
6Today is the one year mark for us with the Undiagnosed Diseases Network (UDN). Our applications landed on their desk last December, 21st, 2015. We are so very...
December 6, 2016 8:53 pm
7This is a special time of year for holiday fun. This is a time for making gingerbread houses with your classmates and attending your children’s holiday concerts. Unfortunately,...
November 17, 2016 8:36 pm
4Words cannot express how much the RareVoice Award means to me. It was a night that I will cherish for the rest of my life.The Abbey represents the...
October 2, 2016 9:31 pm
3Today was a good day. It was a really good day. It is one of those days that I will never forget. Ava, Oskar, Lucy and I stepped...
September 25, 2016 9:04 pm
8“Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts in rare disease advocacy, science, collaborative...
June 9, 2016 4:41 pm
0BUCKS NAME JUSTIN ZANIK ASSISTANT GENERAL MANAGER BUCKS NAME JUSTIN ZANIK ASSISTANT GENERAL MANAGER Posted: Jun 09, 2016 The Milwaukee Bucks today named Justin Zanik the team’s new...
May 13, 2016 5:27 pm
9May, 2016 Dear Mom, Happy Mother’s Day! Thank you for teaching me the Golden Rule, “One should treat others as one would like others to treat oneself.” Thank...
May 8, 2016 8:03 pm
4Update on our Szajnuk’s Diagnostic Odyssey x 4: This week was a very memorable week for our family. Our first meeting regarding the results from our Whole Genome Sequencing (WGS) was...