Rachel Nielsen: Undiagnosed Rare Disease Patient

October 31, 2016 8:36 pm No Comments 3

Please don’t write me off or tell me it’s all in my head simply because you don’t have answers for me. I came to the doctor’s because I wanted help. Let’s work together to get me that help. I would rather a doctor tell me they don’t have answers than to blame my problems on me. Nothing hurts more than to have your life stolen from you and all hope lost, just to have a medical professional tell you it’s all in your head. I have a feeding disorder/disease, not an eating disorder. They should be treated very differently. Do not confuse the two.  

–  Rachel Nielsen