We are thrilled to announce our new RUN Education Series coming in 2019! We are excited to expand our programming and to continue to meet the needs of our rare and undiagnosed disease community. We have already partnered with incredible companies and groups to bring you more educational events focused on the topics that you are interested in throughout the year. We need your help! We have put together a quick survey (2-3 minutes) to gauge interest in topics. We are looking for your input on the topics and sessions that you would like to see covered. Thank you in advance for your participation! 

Take the survey

We cannot wait to begin this new chapter in 2019 with our rare and undiagnosed community!

More to come!

#RUN2Education

If you would like to get involved as a host, a sponsor or a volunteer, please reach out!

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Contact information:

Gina Szajnuk (Zanik)

Co-founder and Executive Director

E: ginaszajnuk@gmail.com

C: (310) 883-4353

Anne Bruns

RUN Advisory Board Member

E: annebruns@gmail.com

C: (801) 903-3308