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December 30, 2018 10:40 am
7The Utah Jazz honored 30 rare and undiagnosed children and their siblings on the court as National Anthem Buddies on March 17th, 2018! Ricky Rubio and Alec Burks...
May 27, 2018 4:28 pm
13Do you know what it is like to live with a rare or an undiagnosed rare disease? Please join the University of Utah School of Medicine’s Pediatric Medicine...
May 27, 2018 10:29 am
4Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...
May 15, 2018 10:05 am
7When you have a rare or undiagnosed condition, finding someone who gets it is a game changer. Introducing The Connect for Hope Project: Our new partnership with S1LY!...
May 2, 2018 10:43 am
14In 2015, we started RUN’s NBA Initiative through the generosity of the Utah Jazz and the Larry H. Miller family. We were so excited to continue our initiative...
April 29, 2018 6:18 pm
16All rare diseases were once undiagnosed. Please help us raise awareness for #UndiagnosedDay. Thank you to Governor Gary Herbert for his declaration. This coming April 29th is officially...
January 15, 2018 12:30 am
6Please consider joining our team and help us power up our fundraising efforts! Dear Friends and Family, The Rare and Undiagnosed Network (RUN) is participating in the...
November 15, 2017 11:46 pm
4Thank you to the National Ability Center (NAC) for including RUN at your Saluting Our Heroes luncheon. It is always such an honor to be a part of the...
February 28, 2017 4:43 pm
1The Szajnuk’s celebrated #RareDiseaseDay with a tea party planned by Lucy! She even drew on the white napkins the Undiagnosed awareness ribbon:) Priceless! However, we are missing our...
February 22, 2017 10:20 am
1My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...