The Szajnuk’s celebrated #RareDiseaseDay with a tea party planned by Lucy! She even drew on the white napkins the Undiagnosed awareness ribbon:) Priceless! However, we are missing our Utah Rare family very much right now! The kids are too. We wish we were there today at the Utah Rare Disease Day State House Event happening right now! Send me pictures! I was actually supposed to be in DC this week. Due to my current health, I decided to stay home and spend the week with the kiddies. Thank you to RDLA for understanding! I am missing all of the great advocates there right now! Again, I cannot say it enough today how thankful we are to everyone for your support of our family and of RUN. I look forward to seeing all of the great work in the Rare and Undiagnosed community continue on after RDD! Sending love and hugs from WI! Much love! Gina #RUNFamily#UtahRareFamily #RareDisease #RareUndiagnosed #1in10Matter#30MillionMatter #DoYourShare #RDD2017DC #UtahRare