Posts tagged ‘#UndiagnosedDay’
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Fox 13 News Utah: Undiagnosed Rare Disease Day
“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...
In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk
Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...
Undiagnosed Rare Disease Day on April 29th, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
#RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Do you know what it is like to live with a rare or an undiagnosed rare disease? In 2018, RUN partnered with the University of Utah School of...
Undiagnosed Rare Disease Day is April 29, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
“Undiagnosed is a Diagnosis” by Gina and Ava Szajnuk
Welcome to the world of the unknown. My oldest daughter, Ava Szajnuk, is growing up so fast and her voice is so important for the next generation. In...
#RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Do you know what it is like to live with a rare or an undiagnosed rare disease? Please join the University of Utah School of Medicine’s Pediatric Medicine...
Global Genes RARE Cast: When “Undiagnosed” Is Your Diagnosis
Global Genes RARE Cast: When “Undiagnosed” Is Your Diagnosis by Daniel Levine and Levine Media Group April 13, 2018 Before most rare disease patients have a name to...
April 29th is #UndiagnosedDay: Undiagnosed Rare Disease Day!
All rare diseases were once undiagnosed. Please help us raise awareness for #UndiagnosedDay. Thank you to Governor Gary Herbert for his declaration. This coming April 29th is officially...
The Diagnostic odysseys: Undiagnosed is a diagnosis
The Diagnostic odysseys: Undiagnosed is a diagnosis By Eleonora Passeri, Anne Lawlor, Polly Moyer, and Amanda Riggs Rackerby. Photo by Alessia Torregrossa, Finestre di Assisi/Windows of Assisi ...