Posts tagged ‘#UndiagnosedDay’
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#RUN2U Event on April 27th: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Flyer donated by Erica Braymen, Ecosyse Do you know what it is like to live with an undiagnosed rare disease? Please join the University of Utah School...
April 21st: Salt Lake City Half Marathon on Saturday
Flyer donated by Erica Braymen, Ecosyse Join us as we cheer on awareness for undiagnosed rare diseases! Please join the Rare and Undiagnosed Network (RUN) at the finish...
#RUNNBA & #UndiagnosedDay
Between the NBA Playoffs with the Utah Jazz and raising awareness for our Undiagnosed Rare Disease Day this coming Sunday, it has already been a very emotional week!...
Utah: Rare Disease Day & Undiagnosed Rare Disease Day
Thank you to Governor Gary Herbert for both of his Declarations Rare Disease Day on February 28th & Undiagnosed Rare Disease Day on April 29th Rare Disease Day...
Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community
All rare diseases were once Undiagnosed. What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...
RUN’s 1st Fundraiser with Papa Murphy’s in Park City: Now until we reach $1000!
Mike Lasater of Papa Murphy’s in Park City has generously committed to donating to the Rare and Undiagnosed Network this week from April 25th – May 1st in honor of...
OFFICIAL in Utah! Governor Herbert’s Declaration: Undiagnosed Disease Day is April 29th, 2016
The State of Utah will be the first in the history of the United States to declare April 29th, 2016, as Undiagnosed Disease Day. Currently, the Undiagnosed community...
As of today, Rachel Nielsen Update: Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen “Rachel’s GI was very concerned about the seizure like episodes she has been having. She decided that she needed...