This was an intimate event for our Rare and Undiagnosed families to share about their diagnostic odyssey and to network about doctors, treatments and therapies. The activities included were the challenge course, archery, cycling, and dinner! We had volunteers there to help with the activities. The event was free and the entire family was welcome to join in the fun!  Thank you to the National Ability Center for your continued support of RUN and our RUN families. Thank you to Dickey’s BBQ in Park City for catering and donating a portion of the cost to RUN. Thank you to Papa Murphy’s in Park City for donating pizzas and your incredible fundraiser for RUN! Thank you to Intermountain Primary Children’s Hospital as our platinum sponsor!!  Thank you to all of our sponsors! Thank you to all of  our RUN families for joining us on Saturday! 

Thank you to all of our sponsors!

RUN’s Rare Day Without Doctors last September

About the Rare & Undiagnosed Network

Our mission is to help families emotionally and financially living with a rare or undiagnosed disease. RUN gives families a voice by sharing their stories. RUN aspires to provide strategic and effective resources for support, diagnosis, and treatment of rare and undiagnosed diseases as well as to set the standard of care for all families on a diagnostic odyssey by making whole genome sequencing available to them through their insurance company.