Take the Pledge to RUN
RUN stands for Rare & Undiagnosed Network. We're a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision:
To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.
Nearly 1 in 10 of your friends, family, and colleagues are living with a rare or undiagnosed disease – half are children.
Join the RUN community and change everything.
To All Mothers, Fathers, & Loved Ones
I am Gina Szajnuk and I am a mother of three young children – each of whom have been diagnosed with an unknown genetic dysfunction: an autonomic neuropathy.
I am determined to help my children and the children of all mothers living in a diagnostic odyssey. Join me on RUN's mission to set a new standard of care for all other families by making whole genome sequencing available through insurance.
Together, we can help families emotionally and financially living with an undiagnosed child, or a child with a rare condition.
LATEST PROFILES | View all profiles »
Profiles of individuals and families in the Rare & Undiagnosed Network. Read, inspire, and pledge.
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Our mission is to create a bridge between doctors, hospitals, researchers and families across the globe to help bring whole genome sequencing to patients who need it.
LATEST POSTS
Explore the struggle and triumph nearly 1 in 10 mothers, fathers, sons, and daughters face while living in their diagnostic odyssey.
Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help By Lee Benson March 5, 2022 5:42 p.m. MST A mother’s unrelenting...
The 2025 campaign #AreYourKidneysOK @worldkidney_day highlights the importance of #earlydetection in preventing and managing kidney disease. Learn more: https://worldkidneyday.org/2025-campaign/ Our journey: https://www.espn.com/nba/story/_/id/39826414/utah-jazz-general-manager-justin-zanik-fighting-life-kidney-disease Thank you all for your continued...
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...
Living in a Diagnostic Odyssey
Imagine for a moment you wake up each morning with the same first thought –- day in and day out. Some mornings, you smile. Many others, you begin with the day with worry, concern, and fear of the unknown.
Meet Gina and her three adorable children. Their story is all too common for those living with a rare or undiagnosed disease.