Menu
Take the Pledge
Advisory Board
Blog & News
Contact Us
Member Profiles
About
Board
Resources
Media
Gallery
Videos
Blog
Contact
Menu
≡
February 28, 2017 Rare Disease Day Proclamation from Governor Scott Walker
October 25, 2016 8:34 pm
No Comments
4
Facebook
Twitter
Google+
Categories
Categories
Select Category
#GivingTuesday (1)
#RUN2Education (5)
#RUN2U (5)
#RUNNBA (6)
#UndiagnosedDay (20)
#UndiagnosedDay2024 (1)
123Genetix (1)
2017 (1)
Advocates (2)
Aliyah Peedle (4)
Alltrials (1)
Amy Muller (1)
Amylynne Santiago Volker (2)
Angel’s Hands Foundation (2)
Anne Bruns (1)
Annette Maughan (1)
April 29 (1)
Autism (1)
Autoimumune Neurology Patient Day (1)
Ava Szajnuk (19)
Ava Szajnuk (Zanik) (1)
Aware of Angels (1)
Batten Disease (1)
Becoming Incurable (1)
Bertrand Might (1)
Brittany Stangley (3)
Calen Forsythe (3)
Carrie Bramlee (1)
Cashlynn Calvert Perry (1)
Cashlynn Perry (1)
Charlee Nelson (1)
Chase Jasper Peterson (1)
Chase The Cure (1)
CHD5 (1)
Christina Bouraimi (1)
Chronic (1)
Chronic Illness (1)
Ciara Webster (2)
Clinical Trial (1)
congenital muscular dystrophy (CMD) (1)
Cristina Might (1)
Cruxfeldt-Jacob Disease (1)
Deanna Brown (1)
Debbie Jorde (1)
DHPS gene mutations (1)
Diagnosis by Dr. Lisa Sanders (2)
DOCK10 (1)
Doris (1)
Dustin Potter (1)
Dysautonomia (1)
Eiger BioPharmaceuticals (1)
Ethan Bruns (1)
FDNA (1)
Gene Wegner (1)
Geneticists Corner (1)
Gina Szajnuk (16)
Global Genes (4)
goldenhar syndrome (1)
Governor Herbert’s Declaration Undiagnosed Day (2)
Grayson McClure (2)
Greg Lopez (1)
Greg Monroe (1)
Hailey Sampsel (5)
Hallie Munro (1)
Harlie Valdez (13)
Gabe Valdez (1)
Have a Heart Home (1)
Heather Madsen (1)
Holly Ferrin (1)
In the Media (3)
Insurance (3)
Invisible (1)
Invisible Disease (1)
Invisible Diseases (1)
Isabella George (1)
Jaderee (2)
Jesse Merimat (1)
John Neal (1)
Josh Forsythe (1)
Julie Potter (1)
Justin Zanik (3)
Juvenile Batten Disease (1)
Kate Nielsen (1)
Kathleen Ann (3)
Katie Maguire (2)
Katie Nuffer (3)
Katie Petersen (1)
Lanafarnib (1)
Landon (1)
Lashay Nicole Hamblin (2)
Lauren Potter (1)
Layla (1)
Logan Madsen (1)
Lucy (1)
Lucy Szajnuk (12)
Mark Kristensen (2)
Matthew Might (1)
Matthew Webster (1)
McKette (1)
MD (1)
MediaPlanet (1)
Medical Mystery (1)
Megan & Katie Nuffer (3)
Michael George (2)
Miracle Flights (1)
Miracles From Heaven (1)
Misdiagnosed? (2)
Mother’s Day (1)
Multiple Sclerosis (1)
MyGene2 (4)
Myiles (1)
National Ability Center (2)
National DNA Day (1)
National Organization for Rare Disorders (NORD) (3)
NBA Initiative (2)
NBA Initiative for Rare and Undiagnosed (1)
NBA Milwaukee Bucks (2)
NBA Utah Jazz (3)
Neglected Diseases Collaboration (NDC) (1)
Netflix (1)
Nic Volker (2)
Open Act (1)
Open Science Prize (1)
Oskar Szajnuk (8)
Penelope (1)
Preston Luke (1)
Preston Zundal (2)
Profile Stories (5)
Rachel Daniels (1)
Rachel Nielsen (10)
Rachel Nielson (3)
Rachel Platten (2)
Rare and Undiagnosed Network (2)
Rare and Undiagnosed Network (RUN) (4)
Rare Angels (2)
RARE Carousel of Possible Dreams (1)
RARE Cast (1)
Rare Diseaes (2)
Rare Disease (6)
Rare Disease Advisory Council (1)
Rare Disease Advisory Council (RDAC) (1)
Rare Disease Congressional Caucus (2)
Rare Disease Day (12)
Rare Disease Facts (1)
Rare Disease Legislative Advocates (1)
Rare Disease Legislative Advocates (RDLA) (2)
Rare Disease Week (1)
Rare Disease Week on Capitol Hill (1)
Rare Events (2)
Rare Genomics Institute (1)
RARE TAMU (1)
Rare Undiagnosed Kids (1)
Rare Voice Award (1)
RARE-X (1)
Recursion (2)
Recursion Pharmaceuticals (1)
Remie Ellett (1)
Ricki Jenson (2)
RUN Education Series (1)
RUN Family (4)
RUN Fundraiser (1)
RUN News (4)
RUN Photo Gallery (1)
RUN Programs (1)
RUN Race Car (1)
RUN’s Educational Series (3)
RUN’s NBA Initiative (6)
RUNmyDNA (1)
Running for Rare (1)
S1LY (1)
Salt Lake City Half Marathon (1)
Samuel and Lars Jenkins (1)
Sandra Sermone (1)
Season Atwater (2)
Senator Hatch (1)
Stan Lockhart (1)
Stefanie B. (1)
Stephen Mark Trummer (1)
Stockton Perry (1)
Symptoms (2)
Szajnuk Family (17)
Szajnuks (3)
Taylor (1)
Team Krabbe Strong (1)
The Connect for Hope Project (1)
The Mighty (2)
The Progeria Research Foundation (1)
Theodore (1)
Two Rare Moma Bears (1)
Uncategorized (224)
Undiagnosed (15)
Undiagnosed Alliance (4)
Undiagnosed Day (16)
Undiagnosed Day Without Doctors (2)
Undiagnosed Disease (11)
Undiagnosed Disease Awareness DAy (3)
Undiagnosed Disease Network (UDN) (3)
Running for Rare (1)
Undiagnosed Pain Syndrome (1)
Undiagnosed Rare Disease (15)
Undiagnosed Rare Disease Community (2)
Undiagnosed Rare Disease Day (1)
Undiagnosed Rare Disease Day in Utah (7)
Undiagnosed Rare Disease Patient (3)
Undiagnosed? (2)
University of Utah (1)
University of Utah School of Medicine (1)
University of Utah School of Medicine Interest Group (1)
Utah Jazz (8)
Utah Rare (7)
Utah Rare Advisory Council RDAC (1)
Utah Rare Disease Day (5)
Utah Rare Symposium (1)
Utah RDAC Policy Guide (1)
WES Results (1)
Wisconsin Rare (1)
