#RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Do you know what it is like to live with a rare or an undiagnosed rare disease?
In 2018, RUN partnered with the University of Utah School of Medicine’s Pediatric Medicine Interest Group for an hour of experiencing what it is like to live with a rare or undiagnosed rare disease. Our speakers inspired the future doctors to explore the world of genetics. We introduced them to what it is like to live in a diagnostic odyssey and the constant unknown. On March 27th, we our hosting our second annual event for #RUN2U! This year we included the future genetic counselors.
We are also raising awareness for our upcoming Undiagnosed Rare Disease Day declared by Governor Gary Herbert on April 29th! More to come!
A special thank you to Andrew Carey, Leslie Denson, Claire Lu, Samantha Derzon, Bradley Hunter, Madison Black and faculty advisor Dr. Jowaria Khan, MD
Moderator:
Speakers:
Photograph by Season Atwater, Aware of Angels
Photograph by Season Atwater, Aware of Angels
A very special thank you to Season Atwater, Aware of Angels, for her photography projects over the past five years. We will be sharing her photographs at the event again this year!
Watch #RUN2U 2018!
Contact:
Andrew Carey: Andrew.Carey@HSC.Utah.edu
Learn More about #UndiagnosedDay, Undiagnosed Rare Disease Day
ABOUT RUN
RUN stands for the Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.
Contact information:
Gina Szajnuk (Zanik)
Co-founder and Executive Director
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey
