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#RUNNBA: Meet our Utah Jazz National Anthem Buddies!
In 2015, we started RUN’s NBA Initiative through the generosity of the Utah Jazz and the Larry H. Miller family. We were so excited to continue our initiative...
April 29th is #UndiagnosedDay: Undiagnosed Rare Disease Day!
All rare diseases were once undiagnosed. Please help us raise awareness for #UndiagnosedDay. Thank you to Governor Gary Herbert for his declaration. This coming April 29th is officially...
Neglected Diseases Collaboration (NDC Medicine)
What iS NDC? Neglected Diseases Collaboration (NDC) is an international crowdsourcing network of doctors helping each other reach an accurate diagnosis for their patients, quickly and efficiently. NDC...
The Diagnostic odysseys: Undiagnosed is a diagnosis
The Diagnostic odysseys: Undiagnosed is a diagnosis By Eleonora Passeri, Anne Lawlor, Polly Moyer, and Amanda Riggs Rackerby. Photo by Alessia Torregrossa, Finestre di Assisi/Windows of Assisi ...
#RUN2U Event on April 27th: University of Utah School of Medicine’s Pediatric Medicine Interest Group
Flyer donated by Erica Braymen, Ecosyse Do you know what it is like to live with an undiagnosed rare disease? Please join the University of Utah School...
Today is National DNA Day: #15for15 Started April 5th
About National DNA Day National DNA Day commemorates the successful completion of the Human Genome Project in 2003 and the discovery of DNA’s double helix in 1953. NHGRI...
#UndiagnosedDay Celebrates Undiagnosed Diseases Network (UDN)
“Solving Medical Mysteries Through Team Science” – UDN Zarko’s Story: Genomic Medicine In Action “Zarko Stanacev experienced years of mysterious debilitating symptoms. He applied to NIH’s Undiagnosed Diseases...
May 1st: “Two Rare Mama Bears” Podcast Launches!
“TWO RARE MAMA BEARS” PODCAST LAUNCHES TO FILL A UNIQUE NEED FOR RARE DISEASE COMMUNITY Like many so-crazy-it-just-might-work ideas, “Two Rare Mama Bears” was borne out of sleep...
May 3rd: Chase the Cure: Brenn Hill-Chase the Cure Benefit Concert
Brenn Hill-Chase the Cure Benefit Concert Dust off your cowboy boots…. This is a night you won’t want to miss! Brenn Hill will put on an amazing show....
123Genetix Launches #HackRare
123Genetix Launches #HackRare Crowdfunding Campaign to Advance Rare Disease Research ̶ Social enterprise looking to raise $20,000 (U.S.) on Indiegogo ̶ London, Ontario, Canada – April 19, 2018...