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Utah Rare Disease Advisory Council (RDAC)
About the Utah RDAC The Utah Rare Disease Advisory Council (RDAC) was formed under HB 106 during the 2020 legislative session of the Utah Legislature (Utah code 26-1-41)....
Today is Undiagnosed Day!
What is Undiagnosed Day? April 29th is Undiagnosed Day. It is a day to celebrate those living with an undiagnosed rare disease and their families as well as...
How Utah Jazz GM Justin Zanik found himself fighting for not just his team, but his life
Justin Zanik has been the general manager of the Utah Jazz since 2019. AP Photo/Rick Bowmer SALT LAKE CITY — In the days before having cake for her husband’s 49th...
Utah Rare Disease Day 2024 at Recursion HQ
Contact information: Gina Zanik(Szajnuk)Co-founder and Executive Director, Rare and Undiagnosed Network (RUN) Vice Chair, Utah Rare Disease Day Council (RDAC) W www.rareundiagnosed.org E ginaszajnuk@gmail.com P (310) 883-4353 To Read: A mother’s...
Watch the Undiagnosed Day Presentation by Ava Zanik (Szajnuk), Undiagnosed Rare Advocate
“Imagine that you only get three years of good health and they are the three years you don’t really remember because you were too young.” – Ava Szajnuk...
Watch Gina Zanik (Szajnuk) on #UndiagnosedDay and the Challenges Faced by Patients | VibeCast Episode 9
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
It’s official! Thank you to Governor Spencer Cox for his declaration of April 29th to be Undiagnosed Rare Disease Day in Utah! #UndiagnosedDay
For More Information for April 29th, 2023: Undiagnosed Rare Disease Day #UndiagnosedDay What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and...
Utah Rare Disease Day Event Recap Video by Recursion
For the video of the entire event visit Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters For additional information visit Rare Disease Day in Utah. Contact information: Gina...
Undiagnosed Day is coming up on April 29th!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....