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Today is Undiagnosed Rare Disease Day! #UndiagnosedDay!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
It’s official! Thank you to Governor Spencer Cox for his declaration of April 29th to be Undiagnosed Rare Disease Day in Utah! #UndiagnosedDay
For More Information for April 29th, 2023: Undiagnosed Rare Disease Day #UndiagnosedDay What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and...
Utah Rare Disease Day Event Recap Video by Recursion
For the video of the entire event visit Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters For additional information visit Rare Disease Day in Utah. Contact information: Gina...
Undiagnosed Day is coming up on April 29th!
What is Undiagnosed Day? Undiagnosed Day is to celebrate those living with an undiagnosed disease and their families as well as to remember the ones we have lost....
Rare & Undiagnosed Network Provides Advocacy, Networking and Support for Patients and Families
Increasing support and awareness worldwide for rare and undiagnosed patients and families. AscellaHealth 03/23/2023 With the collective dedication of advocates, patients, families, researchers and healthcare providers, thousands of...
Utah Rare Disease Day Event Video at Recursion Worldwide Headquarters
Press Release Community Leaders Unite to Provide Support and Resources for Thousands of Utahns with Rare Diseases Declaration Governor Spencer J. Cox’s Rare Disease Day Declaration for February...
Chronic. Invisible. Undiagnosed. Migraine.
Chronic. Invisible. Undiagnosed. Once again, we thought we were going to lose Ava. We spent this past Monday in the ER as well as on January 20th. Her...
Project UnDiagnosed! Recruiting Parents of Undiagnosed Child or Children for an Anonymous Online Survey
Are you a parent of a child with an undiagnosed medical condition? Clinical psychologist PhD student, Meena, is looking to learn more about the needs and challenges of...
Utah Rare Disease Day Gathering Agenda
Contact information: Gina Zanik(Szajnuk)Co-founder and Executive Director, Rare and Undiagnosed Network (RUN) Vice Chair, Utah Rare Disease Day Council (RDAC) E: ginaszajnuk@gmail.comC: (310) 883-4353To Read: A mother’s unrelenting crusade to help...
Utah Rare Disease Advocacy Council (RDAC) Policy Guide
UTAH RARE DISEASE ADVISORY COUNCIL February 16, 2023 Dear Senators and Representatives, In 2020, the Utah legislature established the Rare Disease Advisory Council (RDAC) (Utah Code Annotated Section...