Recent Posts
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Hailey Sampsel speaks out tonight and shares her side of the journey with POTS
Hailey Sampsel: Hello! My name is Hailey, I am a chronic illness fighter! Before I became ill I was a competitive trampoline and tumbler. I went to practice four...
RUN Day Without Doctors hosted by the National Ability Center tomorrow!
We are looking forward to a great time at the National Ability Center (NAC) tomorrow! RUN Day Without Doctors! September 12th: If you are attending, please arrive at 1:30p at...
Amy Sampsel shares her journey with her daughter, Hailey. POTS and much, much more…
Amy Sampsel: I am the mother of three girls. My middle daughter, Hailey, has always been very athletic- climbing at a young age, great coordination and always wanting to...
Gina Szajnuk: Praying to keep Ava safe as well as healthy. Thank you to kind strangers for your help last night!
Gina Szajnuk: Last night was supposed to be a very special night for Ava and me. Justin bought us tickets to the Taylor Swift concert at the Energy...
Ciara Webster shares her journey
Ciara Webster: Hi, my name is Ciara. In April of 2006, at the age of 16, I was diagnosed with a rare autoimmune disease known as Eosinophilic Fasciitis. At...
Katie Nuffer: Shares about conquering her pain and starting her senior year of high school!
Katie Nuffer: Hey everyone, The beginning of school is stressful and exciting at the same time. It’s something that I, personally, have been looking forward to for quite some...
Annette Maughan: The Path to KBG
Annette Maughan: After 7 years, our little miracle, Bug, made two….three. Small, perfect, happy and very hungry. This little boy led us into a world we never realized...
Register for Aware of Angels Art For Angels-Art Contest & Silent Auction
ARTISTS: your ART is needed! Donate your ART for a cause & promote your work. Purchase original Artwork! Aware of Angels is excited to host our 1st Annual...
Register now for Global Genes annual RARE Patient Advocacy Summit
Every year Global Genes hosts it’s annual RARE Patient Advocacy Summit. The goal of the Summit is to have patient advocates and other rare disease stakeholders, “Connect. Educate....
Rare and Undiagnosed Network (RUN) Day Without Doctors Hosted by the National Ability Center in Park City!
Dear Families, The National Ability Center has been generous to offer an afternoon of fun for our rare and undiagnosed families here in Utah. The activities will be...