Recent Posts
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Lucy Szajnuk spending the night in observation at Primary Children’s
Gina Szajnuk: Lucy has had a fever the past three days. It has been as high as 106 degrees. Her white blood cell count this morning was 31,000...
Whole Genome Sequencing for the Szajnuks through the Utah Genome Project
Gina Szajnuk: “August 6, 2015, was a day I will never forget. My family had their blood drawn for whole genome sequencing. This is something we have been...
Stephanie Valdez shares some GOOD NEWS about Harlie today!
Stephanie Valdez: “So excited to finally post some good news… Harlie’s first appointment with orthopedic surgeon that placed screws in Harlie’s hip went great. He said it’s still...
Ava Szajnuk shares her first blog for RUN Kids
Ava Szajnuk: “Hi. My name is Ava. I am eight years old. I am rare and undiagnosed. My family is going through a very tough life because it’s...
Update on Grayson McClure. What can a mother do?!
Update from Kay McClure: “Hi Gina, Long days as you well know. Grayson convulses all day. Up to so much medicine in his port:( His exome sequencing was...
Stephanie Valdez shares today. When it rains, it pours.
Stephanie Valdez: “In these moments, it’s easy to focus on all of the things that have gone wrong. It’s easy to focus on the loss and the heartbreak...
Harlie Valdez is home from the hospital
We are happy to hear that Harlie, Stephanie and Gabe are home tonight. However, the road ahead for Harlie and her entire family is going to be a...
The Szajnuk family: Trying to accept our “normal”
July 13, 2015: Just like everyone else, our summer has gone by too fast. My mission this summer was to travel to see our families. We spent time...
Ava Szajnuk and Harlie Valdez: We all said prayers today.
July 12, 2015: Ava and Harlie met last October on the court of the NBA Utah Jazz. We watched this amazing family, the Valezs, in awe of being...
Harlie Valdez is out of surgery. Thank you for your prayers.
Harlie is out of surgery. Long screws are now in Harlie’s hip. We need to pray that the screws do not cause more fractures in her bones. They...