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Rare and Undiagnosed Network, Inc. (RUN) is officially a 501(c)(3)

April 29, 2015 2:11 pm

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We planted a seed. And, now we will watch RUN grow together. Thank you for everyone that is helping RUN become something more than we ever imagined. We...

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Stephanie Valdez: Update on Harlie today

April 28, 2015 5:59 pm

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Longest night ever.. After receiving the cytoxin treatment and methotrexate and 1000 mg of steroid yesterday, Harlie started feeling sick about 9 pm last night. She started vomiting...

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Gabe Valdez: Harlie’s update

April 27, 2015 10:13 pm

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Just wanted to update everyone on Harlie. Harlies spirits have been good the last couple days and she’s pushing herself in physical therapy, but she has lost so...

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In Honor of SWAN USA Undiagnosed Day Today: Please support www.iamundiagnosed.com

April 25, 2015 2:51 am

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In honor of  Undiagnosed Awareness Day April 24th 2015 by SWAN USA, Amy Clugston, we would like to support Alex of IamUndiagnosed.com. Thank you to the UndiagnosedFilm producers to...

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Gabe Valdez: “RUN HARD, RUN FAST, JUST RUN”

April 19, 2015 5:57 pm

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GABE SHARES THIS SUNDAY MORNING… Today is the 231st day of our journey. It begins at 3:00a. My baby calls for me because she has to go to...

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Harlie Valdez: Losing a lot of blood. Waiting for next steps. Please pray.

April 17, 2015 5:18 pm

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Stephanie Valdez updated us this morning: “Harlie’s hemoglobin has dropped down to 5.2. Her heart rate is extremely high. They are giving her 2 units of blood ASAP....

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Handmade blankets donated to RUN families by Debby

April 15, 2015 4:37 pm

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From Megan: Debby started making beautiful minky blankets for her family members about 10 years ago. “I learned how to make these blankets from a friend who was making one for...

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Harlie Valdez: Amy Holtz shares about the candlelight vigil last night+ update at end

April 13, 2015 11:02 pm

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The first time I met Harlie Valdez was at a softball game.  My daughter was competing against her in a tournament.  I was mesmerized by so many things...

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Mark Hoffman, Ph.D. Finalist in Medstro’s Google Wearables in Healthcare Challenge

April 13, 2015 2:52 pm

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Dear Mark, Thank you to you and your entire family for your continued support of our family. We were brought together through Justin’s mother, Carla Oliver. I remember...

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Stephanie and Gabe Update RUN: Harlie is out of surgery!

April 11, 2015 2:27 am

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Stephanie and Gabe gave us their approval to post his update: “Just want to let you know that Harlie made it out of surgery!! FINALLY!” Stephanie and Gabe: After...

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