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RUN’s NBA Initiative: Utah Jazz National Anthem Buddies on March 2nd, 2019!
The Utah Jazz honored 32 rare and undiagnosed children on the court as National Anthem Buddies on March 2nd, 2019. Derrick Favors, Rudy Gobert, Joe Ingles and Ricky...
Fox 13 News Utah: Undiagnosed Rare Disease Day
“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk Thank you to Fox 13 News for raising awareness...
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...
In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk
Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...
Undiagnosed Rare Disease Day on April 29th, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...
RARE Cast by Global Genes: “A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition”
April 29 is Undiagnosed Rare Disease Day. It is a day when advocates raise awareness among the general public and policy makers about the emotional, physical, and financial...
Watch our #RUN2U Program: University of Utah School of Medicine’s Pediatric Medicine Interest Group
In 2018, RUN partnered with the University of Utah School of Medicine’s Pediatric Medicine Interest Group for an hour of experiencing what it is like to live with...
CAL RARE Partners with RUN’s NBA Initiative: Golden State Warriors on April 5th!
The Golden State Warriors are hosted their first Rare Disease Awareness Night when they hosted the Cleveland Cavaliers on Friday, April 5th! #RUNNBA! Thanks to the hard work...
RUN’s Educational Series: RARE Evolution with Recursion
RUN is excited to share a video from our first RUN Educational Series with Recursion Pharmaceuticals. This event was designed to inspire, motivate, and spark collaboration among the rare...
RUN’s NBA Initiative: Utah Jazz on March 29th!
On March 29th, RUN hosted the Teuscher family for dinner and a pre-game experience. It was a night of smiles, hugs and the Utah Jazz! Learn about August...