Search results for ‘Rachel’
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Rachel Nielson’s update
So this happened!?? Quick update: I’m going into surgery tomorrow to get a J tube placed into my stomach. It’ll be like my NJ except instead of going...
Kate Nielson shares about Rachel’s day with her family. A day without doctors.
Kate Nielson: Rachel had a great day being with family and friends at her brother, Nicholas’, wedding yesterday. She looked beautiful and enjoyed being out of the hospital. ...
Kate Nielsen shares her journey with her daughter, Rachel
Kate Nielsen: Where to start? December, 2014, the ED, Emergency Department, dismissed Rachel Nielsen’s abdominal pain as being constipated. After sending her home to do a clean out, she...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
All diseases were once undiagnosed. What is an undiagnosed condition? A child has an “undiagnosed condition” when a physician is unable to find a diagnosis for certain characteristics...
Today is Undiagnosed Rare Disease Day #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today as well as the frontline heroes of COVID-19 All diseases were once undiagnosed. During these very uncertain times,...
RUN’s Education Event Presented by PRA Health Sciences
You’re Invited! RUN for Education Presented by PRA Health Sciences and the Rare & Undiagnosed Network Join us for an inspiring evening as some of the nation’s leaders in...
RUN’s NBA Initiative: Utah Jazz National Anthem Buddies on March 2nd, 2019!
The Utah Jazz honored 32 rare and undiagnosed children on the court as National Anthem Buddies on March 2nd, 2019. Derrick Favors, Rudy Gobert, Joe Ingles and Ricky...
Today is Undiagnosed Rare Disease Day! #UndiagnosedDay
Join us to honor the Undiagnosed Rare Disease Community today! All rare diseases were once undiagnosed. Today is RUN’s Undiagnosed Rare Disease Day! We hope to help raise...
In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk
Hi. My name is Ava Szajnuk. Thank you for joining us today to learn about what it is like to live with a rare or undiagnosed disease. I...
Undiagnosed Rare Disease Day on April 29th, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Today marks the first day of RUN’s Undiagnosed Rare Disease Day...