Search results for ‘Rachel’
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Rachel Nielsen: H.O.P.E (hold on, pain ends)
I’ve found that having a chronic illness is much like losing someone very close to you. People will say they understand your pain, they’ll tell stories about how...
Rachel Platten sends her love to our RUN families and our #RareTeens on her birthday!
Thank you Rachel Platten for sending your love to our Rare & Undiagnosed Network RUN families and our #RareTeens!!! You are such an inspiration to the entire #RareUndiagnosed...
Rachel Platten’s Birthday wish for Ella on her 4th Birthday today!
RUN would like to introduce John Neal and Team Krabbe Strong. John made this video for #TeamElla for her 4th birthday today. Since Ella is such a huge...
As of today, Rachel Nielsen Update: Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen “Rachel’s GI was very concerned about the seizure like episodes she has been having. She decided that she needed...
Rachel Nielsen: Diagnosed as Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen is a teenager diagnosed as Undiagnosed. She has struggled with getting proper care for the past 18 months...
Rachel Nielsen’s Children’s Hospital of Wisconsin Journey
Recently, my parents and I had the opportunity to go to the Children’s Hospital of Wisconsin to see 2 specialists to hopefully get more answers and treatments for...
Rachel- Undiagnosed with EOSINOPHILIC ESAPHAGITUS/COLITIS
Rachel, born in 1999. The youngest of four children. She has two brothers, a sister, and a sister-in-law. Her diagnoses are: EOE, EC, Gastroparesis, Delayed Motility, Orthostatic Intolerance, Neurogenic Bladder,...
Rachel Nielsen: “Daughter of a King.”
I’ve always had problems growing up. When I was born, I was 6.5 lbs. When I was 4 years old, I was still the size of an 18...
Rachel Nielson at the University of Utah ER
After a fun day at the Rare Teen Photo Shoot yesterday, Rachel threw up her feeding tube and then passed out last night when she got home. She...
Rachel Nielson’s Update: No surgery last week
So just to clarify with everyone, I did not end up having surgery on Wednesday. There were some miscommunications between my doctor and the surgeon. The surgeon wanted...