Search results for ‘Rachel’
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Undiagnosed Rare Disease Day is April 29, 2019!
Join us to honor the Undiagnosed Rare Disease Community in April! All rare diseases were once undiagnosed. Governor Gary Herbert declared Undiagnosed Rare Disease Day in Utah! What...
Global Gene’s RARE Daily: Learn more about RUN, our Mission and our Family
Rare Leader: Gina Szajnuk, Co-founder and Executive Director of Rare and Undiagnosed Network Written by Daniel Levine on the Global Gene’s RARE Daily on March 5, 2018 Photo...
RUN Story
UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk (This blog was started in February, 2015) I have three children that are officially...
#RUNNBA: Meet our Utah Jazz National Anthem Buddies!
In 2015, we started RUN’s NBA Initiative through the generosity of the Utah Jazz and the Larry H. Miller family. We were so excited to continue our initiative...
Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community
All rare diseases were once Undiagnosed. What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...
UNDIAGNOSED is a DIAGNOSIS: The Szajnuk’s Journey Updated!
UNDIAGNOSED IS A DIAGNOSIS: Living in a Diagnostic Odyssey x 4 By Gina Szajnuk I have three children that are officially diagnosed as Undiagnosed. They have an Undiagnosed...
RUN’s Journey
My name is Gina Szajnuk and I am the mother of three children with an undiagnosed genetic dysfunction. I am also undiagnosed. We live in a diagnostic odyssey...
Media
RUN in the MEDIA LINKS Rare & Undiagnosed Network Provides Advocacy, Networking and Support for Patients and Families Utah Rare Disease Day Recap 2023 Global Genes Patient Advocacy...
Grayson McClure: “23 and Trapped in an Apartment” By JOHN M. GLIONNA
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...
LAS VEGAS REVIEW-JOURNAL: Reno man’s suffering from undiagnosed disease also traps his mother By John M. Glionna
Reno man’s suffering from undiagnosed disease also traps his mother By JOHN M. GLIONNA SPECIAL TO LAS VEGAS REVIEW-JOURNAL RENO It’s late afternoon and 23-year-old Grayson McClure is...