Search results for ‘Oskar’
Page 6 of 9
Fox 13 News: “Undiagnosed Day” highlighted in Utah for the first time by Tamara Vaifanua
POSTED 7:40 PM, APRIL 29, 2016, BY TAMARA VAIFANUA SALT LAKE CITY – Gov. Gary Herbert declared April 29 Undiagnosed Day. For dozens of Utah families, it’s a...
Nonprofit helps those who suffer rare and undiagnosed diseases Papa Murphy’s will raise funds for families by Scott Iwasaki, The Park Record
SCENE Nonprofit helps those who suffer rare and undiagnosed diseases Papa Murphy’s will raise funds for families Scott Iwasaki, The Park Record POSTED: 04/26/2016 04:45:00 PM MDT...
Andrew Scholte: RUNning for Rare Zebras
Andrew Scholte: “For the past two years I have been partnered with Emma, a member of the Gaucher community for the Running For Rare Team. This year I...
Faith-based movie “Miracles From Heaven” misses opportunity to raise awareness for the majority of rare disease families
Thank you to the filmmakers for making the movie “Miracles From Heaven” with Jennifer Garner. It is the real-life story of Annabel, who suffered from a rare disease....
Rare Mom’s Letter to Hollywood: “Miracles from Heaven”
Dear Hollywood, As a mother of three rare and undiagnosed children and the Co-founder of the Rare & Undiagnosed Network (RUN), thank you for making the movie “Miracles...
Lucy admitted. Ava with “mast cell” like rash. Goodbye 2015! Praying for answers in 2016!
Spending the Holidays with yet another urgent care visit, ER visit and hospital admittance, it made me realize how much I wanted 2015 to end. We need 2016...
Primary Children’s Hospital feels like home. No more panic attacks.
Gina Szajnuk: Lucy had yet another procedure today. I used to have panic attacks when the children had to have sedation. I was so worried about them dying....
Lucy Szajnuk’s Dog Attack: Rare and Life isn’t Fair: Open Letter regarding a NO DOG policy on all Soccer Fields in Park City, UT
My role in life is to advocate for my three children that are currently living in the medical world of the unknown. Our family lives on the sideline...
Ava Szajnuk shares her first blog for RUN Kids
Ava Szajnuk: “Hi. My name is Ava. I am eight years old. I am rare and undiagnosed. My family is going through a very tough life because it’s...
The Szajnuk family: Trying to accept our “normal”
July 13, 2015: Just like everyone else, our summer has gone by too fast. My mission this summer was to travel to see our families. We spent time...