Search results for ‘Oskar’
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Ava Szajnuk and Harlie Valdez: We all said prayers today.
July 12, 2015: Ava and Harlie met last October on the court of the NBA Utah Jazz. We watched this amazing family, the Valezs, in awe of being...
Szajnuk’s family photo. June 2nd, 2013. What has changed since then?
Today is June 2nd, 2015. The family picture we always use is now two years old. What has changed in the last two years? Ava had no idea...
Much better than a hospital room!
Harlie Valdez and Ava Szajnuk enjoy a night out together: This past Saturday night was a great night at The National Ability Center’s Barn Party. For Harlie, it...
Harlie’s cousin: Keely Valdez’s Article on RUN for her school newspaper
Rare and Undiagnosed Network By Keely Valdez A once healthy child who may have done sports or stayed active, had a great sense of humor, or who was...
Handmade blankets donated to RUN families by Debby
From Megan: Debby started making beautiful minky blankets for her family members about 10 years ago. “I learned how to make these blankets from a friend who was making one for...
Mark Hoffman, Ph.D. Finalist in Medstro’s Google Wearables in Healthcare Challenge
Dear Mark, Thank you to you and your entire family for your continued support of our family. We were brought together through Justin’s mother, Carla Oliver. I remember...
Justin Zanik: Board of Directors/Secretary
Justin Zanik is entering his third season as general manager of the Utah Jazz, overseeing the day-to-day management of basketball operations. Zanik originally joined the Jazz as assistant...
The loss of Christina “Tina” Tournant
I read the post from the Dysautonomia Advocacy Foundation on Facebook earlier this week. It stopped my heart for a second. Christina “Tina” Tournant took her own life due...
Utah Rare’s 2015 Rare Disease Day Symposium. Rare families. The heartbreaking stories from yesterday…
I felt honored to be a part of the Utah Rare’s 2015 Rare Disease Day Symposium. It will be a day that I will never forget. Not only...
Utah’s Rare Disease Inaugural Symposium: Speech by Gina and Justin
LIVING IN A DIAGNOSTIC ODYSSEY, TIMES FOUR Good afternoon. My name is Gina Szajnuk and this is my husband Justin Zanik. We have three undiagnosed children. Ava, is...