Search results for ‘Rachel Nielsen’
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Devastating Diagnosis: Rachel Nielsen’s Letter to her Brother
Hey Bro, I know writing letters and sharing sappy sibling moments together isn’t really our thing, but I felt I needed to address something that is happening in...
Rachel Nielsen: Admitted For Serious Infection and Prepping for Surgery
Kate Nielsen received a call this morning at 1:00a that her daughter, Rachel, does in fact have a bacteria infection in her central line. She will have it...
Rachel Nielsen: Harmons Cooking School Experience from Make-A-Wish
Special thanks to Chef Evan Francois and Photographer Renata Stone. Thank you to everyone at Harmons Cooking School. Thank you to Bob Leibo and everyone at Make-A-Wish. I...
“Scuff Mark” by Rachel Nielsen
You can do it, Rachel, I told myself as I visualized sticking the landing of my next skill. Trembling from anticipation, I wobbled, tightening my toes’ grip on...
Rachel Nielsen: Undiagnosed Rare Disease Patient
Please don’t write me off or tell me it’s all in my head simply because you don’t have answers for me. I came to the doctor’s because I...
Rachel Nielsen: Still Undiagnosed but we received some answers!
Another update! (You guys are probably sick of me by now😅😉🙈) I recently got some results back from a muscle biopsy in Wisconsin and I saw a geneticist...
Rachel Nielsen and Calen Forsythe: Prayers Needed
We have had a long day of negotiating between the University of Utah Hospital and Intermountain Primary Children’s Hospital for Rachel’s care today. She has two amazing doctors...
Rachel Nielsen: H.O.P.E (hold on, pain ends)
I’ve found that having a chronic illness is much like losing someone very close to you. People will say they understand your pain, they’ll tell stories about how...
As of today, Rachel Nielsen Update: Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen “Rachel’s GI was very concerned about the seizure like episodes she has been having. She decided that she needed...
Rachel Nielsen: Diagnosed as Undiagnosed
Kate Michaelis Nielsen updates us on her daughter: Rachel Nielsen is a teenager diagnosed as Undiagnosed. She has struggled with getting proper care for the past 18 months...