Recent Posts
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It’s Official! The Szajnuks are back with the NBA Utah Jazz
We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...
“The Light in the Darkness” by Kathleen Anne
There comes a time in your life when you have to sit back and watch how quickly the world is spinning around you. You stop, as everything is...
Szajnuk’s Next Chapter: Moving on from the Milwaukee Bucks
It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...
Still Living in the Unknown: Happy 10th Birthday Ava Szajnuk!
We are celebrating Ava’s tenth birthday today! I remember the feeling I had the second I found out I was pregnant with Ava. I waited for years to...
Devastating Diagnosis: Rachel Nielsen’s Letter to her Brother
Hey Bro, I know writing letters and sharing sappy sibling moments together isn’t really our thing, but I felt I needed to address something that is happening in...
Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community
All rare diseases were once Undiagnosed. What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...
Undiagnosed: An Update on the Szajnuks
Anyone living with an undiagnosed disease knows how hard it is every single day to persevere. When the disease is invisible, it is even harder because you have to...
Bio: Ava Szajnuk (Zanik)
Ava Szajnuk (Zanik) is a 16-year-old sophomore at Skyline High School in Salt Lake City, Utah. She was born a healthy child and hit all of her milestones...
The Undiagnosed Alliance: Mission and Goals
The Undiagnosed Alliance (the Alliance) is a coalition of undiagnosed rare disease stakeholders coming together with the purpose to foster unified advocacy among patient organizations, individuals, and stakeholders...
Taylor-12q14.1 Microdeletion Syndrome
Taylor-age 3 Diagnosis-12q14.1 Microdeletion Syndrome Photographs were donated by Season Atwater of Aware of Angels. This story first appeared on Aware of Angels. Our little guy Taylor...