Recent Posts
Page 14 of 50
National Ability Center: Saluting Our Heroes
Thank you to the National Ability Center (NAC) for including RUN at your Saluting Our Heroes luncheon. It is always such an honor to be a part of the...
Rare Disease Congressional Caucus Briefing November 15th
RUN is a proud partner of the Rare Disease Congressional Caucus An accurate diagnosis is usually the first step in developing a treatment plan for a patient, but it...
The Rarest of the Rare: Our Miracle Boy by Stefanie B.
Mothers should always be given credit for knowing their children. Find practitioners who will listen to you and care more about what you know than what they know. I started this blog to...
A Dream Come True! The Szajnuks meet Rachel Platten
We are all a “Lone Ranger” We all have our own “Fight Song” RUN will “Stand By You” Together we are RUN family We Can Do Hard Things...
It’s Official! The Szajnuks are back with the NBA Utah Jazz
We are so very blessed to have the opportunity to return to the Utah Jazz. We are so very thankful to the Larry H. Miller family, Steve Starks,...
“The Light in the Darkness” by Kathleen Anne
There comes a time in your life when you have to sit back and watch how quickly the world is spinning around you. You stop, as everything is...
Szajnuk’s Next Chapter: Moving on from the Milwaukee Bucks
It was such an honor to be a part of the Milwaukee Bucks this past year. It was a dream come true to be back in Wisconsin and...
Still Living in the Unknown: Happy 10th Birthday Ava Szajnuk!
We are celebrating Ava’s tenth birthday today! I remember the feeling I had the second I found out I was pregnant with Ava. I waited for years to...
Devastating Diagnosis: Rachel Nielsen’s Letter to her Brother
Hey Bro, I know writing letters and sharing sappy sibling moments together isn’t really our thing, but I felt I needed to address something that is happening in...
Today is Undiagnosed Day! Join Us to Honor the Undiagnosed Rare Disease Community
All rare diseases were once Undiagnosed. What does “Undiagnosed” mean? “An undiagnosed disease is a medical condition without a known cause despite a lot of evaluation.” Undiagnosed Disease...