Recent Posts
Page 31 of 49
Hailey Sampsel shares about her 15th birthday
November 22nd: Yesterday was my 15th birthday. I’ve been dreading that day for awhile now because it’s a reminder of how long I’ve been sick. Last year, I...
Not cool to Bully a Rare kid
Harlie Valdez received the following text last night from a teenage boy. “I hope you don’t get better. I hope you get sicker. It was better when you...
Amazon Smile: Please donate to the Rare and Undiagnosed Network this Holiday season!
RUN is FINALLY starting to solicit for funds! We need your help to keep RUN going in 2016! We have big things planned already! I love all of...
Dear Healthcare Professional by Melissa Nearman
Dear Healthcare Professional, Please understand that coming to the emergency room was my last resort. I can guarantee I tried to talk my way out of being brought...
Kate Nielson shares about Rachel’s day with her family. A day without doctors.
Kate Nielson: Rachel had a great day being with family and friends at her brother, Nicholas’, wedding yesterday. She looked beautiful and enjoyed being out of the hospital. ...
Hailey Sampel: Happy 15th Birthday but ended in the ER. She was admitted during the night
Amy Sampsel: We ended up getting admitted to NTU. We couldn’t see a neurologist in the ER and I said we needed help. They have talked to one now...
RareArtist.org: Please vote for Ava Szajnuk’s drawing!
Link to RareArtist.org “Ava’s View” by Ava Szajnuk, 8 yrs old. This drawing was when I was 6 years old and in the hospital for weeks. I was looking...
Kate Nielsen shares her journey with her daughter, Rachel
Kate Nielsen: Where to start? December, 2014, the ED, Emergency Department, dismissed Rachel Nielsen’s abdominal pain as being constipated. After sending her home to do a clean out, she...
Primary Children’s Hospital feels like home. No more panic attacks.
Gina Szajnuk: Lucy had yet another procedure today. I used to have panic attacks when the children had to have sedation. I was so worried about them dying....
Once there was a happy little girl…by Harlie Valdez
Once there was a happy little girl, who had a perfect life. She couldn’t have asked for better. She had friends, family, sports, and a roof over head....