Fox 13 News Utah: Undiagnosed Rare Disease Day
“You have to keep fighting for an answer. You have to keep fighting for a cure.” – Ava Szajnuk
Thank you to Fox 13 News for raising awareness for our Undiagnosed Rare Disease Day on April 29th! A very special thank you to everyone that shared about #UndiagnosedDay to honor our undiagnosed rare disease community!
In Honor of #UndiagnosedDay: “Push Through” by Ava Szajnuk
Listen to Ava on RARE Cast by Global Genes: Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition
Ava’s journey detailed in 2013 – 2015
2015: Ava Szajnuk shares her journey to her 2nd Grade Classmates
Learn More about #UndiagnosedDay, Undiagnosed Rare Disease Day
A special thank you to Erica Braymen, Ecosyse.com, for the marketing materials and social media banners. She took Ava’s drawing and turned it into something very special.
ABOUT RUN
RUN stands for the Rare & Undiagnosed Network. We’re a group of advocates, patients, families, researchers, and healthcare providers who share the same mission and vision: To empower rare and undiagnosed patients and their families with genomic information and community through advocacy, networking and support.
Contact information:
Gina Szajnuk (Zanik)
Co-founder and Executive Director
E: ginaszajnuk@gmail.com
C: (310) 883-4353
To Read: “What is the hardest part of being undiagnosed?” by Gina Szajnuk
To Read: “Undiagnosed is a Diagnosis” by Ava and Gina Szajnuk
To Read: The Szajnuk Journey
