Search results for ‘Rachel’
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A Dream Come True! The Szajnuks meet Rachel Platten
We are all a “Lone Ranger” We all have our own “Fight Song” RUN will “Stand By You” Together we are RUN family We Can Do Hard Things...
Devastating Diagnosis: Rachel Nielsen’s Letter to her Brother
Hey Bro, I know writing letters and sharing sappy sibling moments together isn’t really our thing, but I felt I needed to address something that is happening in...
Rachel Nielsen: Admitted For Serious Infection and Prepping for Surgery
Kate Nielsen received a call this morning at 1:00a that her daughter, Rachel, does in fact have a bacteria infection in her central line. She will have it...
Rachel Nielsen: Harmons Cooking School Experience from Make-A-Wish
Special thanks to Chef Evan Francois and Photographer Renata Stone. Thank you to everyone at Harmons Cooking School. Thank you to Bob Leibo and everyone at Make-A-Wish. I...
“Congenital Generalized Lipodystrophy (AGPAT2) and Alani” by Rachel Daniels
Born in January 2014 was my sweet Alani. Just over 5 lbs, she was so small and frail but so beautiful. She had an awfully large belly to...
“Scuff Mark” by Rachel Nielsen
You can do it, Rachel, I told myself as I visualized sticking the landing of my next skill. Trembling from anticipation, I wobbled, tightening my toes’ grip on...
Rachel Nielsen: Undiagnosed Rare Disease Patient
Please don’t write me off or tell me it’s all in my head simply because you don’t have answers for me. I came to the doctor’s because I...
Rachel Nielsen: Still Undiagnosed but we received some answers!
Another update! (You guys are probably sick of me by now😅😉🙈) I recently got some results back from a muscle biopsy in Wisconsin and I saw a geneticist...
Kate Nielsen updates on her daughter, Rachel
Sunday, October 3, 2016 Rachel Nielsen and family appreciate all the love and prayers sent our way. This has been a very stressful and tiring week spent at...
Rachel Nielsen and Calen Forsythe: Prayers Needed
We have had a long day of negotiating between the University of Utah Hospital and Intermountain Primary Children’s Hospital for Rachel’s care today. She has two amazing doctors...