Recent Posts
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Thank you to everyone involved last Saturday! RUN Day Without Doctors Hosted by the National Ability Center! We have a ton of pictures to share!
Epilepsy Association’s upcoming event – the Black and White Community Service Awards Ball
Link to Epilepsy Association’s upcoming event – the Black and White Community Service Awards Ball
Pitt Hopkins Awareness Today. September 18th! Please watch their video. It’s extremely powerful. Please share to make more awareness!
I am Nicole Lenzen. I am the mother of a little boy with an ultra rare genetic syndrome, Pitt Hopkins Syndrome. When he was diagnosed three years ago,...
Hailey Sampsel speaks out tonight and shares her side of the journey with POTS
Hailey Sampsel: Hello! My name is Hailey, I am a chronic illness fighter! Before I became ill I was a competitive trampoline and tumbler. I went to practice four...
RUN Day Without Doctors hosted by the National Ability Center tomorrow!
We are looking forward to a great time at the National Ability Center (NAC) tomorrow! RUN Day Without Doctors! September 12th: If you are attending, please arrive at 1:30p at...
Amy Sampsel shares her journey with her daughter, Hailey. POTS and much, much more…
Amy Sampsel: I am the mother of three girls. My middle daughter, Hailey, has always been very athletic- climbing at a young age, great coordination and always wanting to...
Gina Szajnuk: Praying to keep Ava safe as well as healthy. Thank you to kind strangers for your help last night!
Gina Szajnuk: Last night was supposed to be a very special night for Ava and me. Justin bought us tickets to the Taylor Swift concert at the Energy...
Ciara Webster shares her journey
Ciara Webster: Hi, my name is Ciara. In April of 2006, at the age of 16, I was diagnosed with a rare autoimmune disease known as Eosinophilic Fasciitis. At...
Katie Nuffer: Shares about conquering her pain and starting her senior year of high school!
Katie Nuffer: Hey everyone, The beginning of school is stressful and exciting at the same time. It’s something that I, personally, have been looking forward to for quite some...
Annette Maughan: The Path to KBG
Annette Maughan: After 7 years, our little miracle, Bug, made two….three. Small, perfect, happy and very hungry. This little boy led us into a world we never realized...