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Gabe Valdez shares: Harlie gets a break from the hospital last week. Home over the weekend. And, an update on Harlie this morning.
Gabe shared: I would like to thank Altius Insurance & Primary Children’s Hospital for making it possible for my baby to take a break from reality and enjoy...
Strangers coming together to make change and become a rare and undiagnosed family.
I have been blown away by the generosity of strangers over the past few years. The power of love from friends and family helps more than you will...
Stephanie’s Birthday Present. Harlie Valdez is coming home. Day ONE of their next step on their journey.
As Gina sits in Harlie’s hospital room with her parents, Stephanie and Gabe, we talk about what it means to go home today on Stephanie’s birthday. A sign...
Thank you for all of your donations for Harlie Valdez!
RUN wanted to take a moment to thank everyone for their generosity! When we went to visit Harlie at the beginning of the week, we asked her what...
Stephanie’s update on her daughter, Harlie Valdez
As a parent with a sick child in the hospital, we have to be at their bedside 24/7. We struggle to shower. We struggle to eat. We struggle...
Update by Katie and Megan Nuffer
Katie’s update: STRESSED Stress. Have you ever been under so much stress it’s all you think about? Have you ever cried yourself to sleep multiple times a week,...
Sarah and Remie Ellett
“…our baby will be so tiny & small, having her mom’s beautiful feature. Totally in love with her I’ll fall, she’ll be the most beautiful creature…she’ll have small...
Update on Harlie Valdez today…
I was just sitting down to call Stephanie today to find out how Harlie was doing. Thank you for all of your comments on RUN as well as...
We are now able to file the 501(c)(3) application! Brian, thank you for your gift to our organization!
Dear RUN families, Due to the generosity of Brian Villers, Justin’s childhood friend, we were able to afford the $850 application fee to file the 501(c)(3) this past...
Insurance company approves WES analysis for Oskar. Lucy Denied. Gina Denied.
Our insurance company just approved the WES (whole exome sequencing) analysis for Oskar. Great news! Thank you!!! However, they DENIED the WES analysis for both Lucy and Gina....