Recent Posts
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Handmade blankets donated to RUN families by Debby
From Megan: Debby started making beautiful minky blankets for her family members about 10 years ago. “I learned how to make these blankets from a friend who was making one for...
Harlie Valdez: Amy Holtz shares about the candlelight vigil last night+ update at end
The first time I met Harlie Valdez was at a softball game. My daughter was competing against her in a tournament. I was mesmerized by so many things...
Mark Hoffman, Ph.D. Finalist in Medstro’s Google Wearables in Healthcare Challenge
Dear Mark, Thank you to you and your entire family for your continued support of our family. We were brought together through Justin’s mother, Carla Oliver. I remember...
Stephanie and Gabe Update RUN: Harlie is out of surgery!
Stephanie and Gabe gave us their approval to post his update: “Just want to let you know that Harlie made it out of surgery!! FINALLY!” Stephanie and Gabe: After...
Update by Gabe Valdez: Harlie is having surgery today.
We just heard from Gabe Valdez that it was okay to post an update on Harlie Valdez. Harlie was in the ICU overnight. The family had a meeting...
Harlie’s update from the ER
Harlie arrived at the hospital this afternoon. She was “shock protocol” for the third time since January. With her high heart rate and high fever, she is too...
Stephanie was told to call 911. Harlie is being rushed to the ER
Dustin Stipanovich just informed us that Harlie has been vomiting blood and has had extreme stomach pain. When they gave her meds today, they came out of her...
Gabe Valdez shares: Harlie gets a break from the hospital last week. Home over the weekend. And, an update on Harlie this morning.
Gabe shared: I would like to thank Altius Insurance & Primary Children’s Hospital for making it possible for my baby to take a break from reality and enjoy...
Strangers coming together to make change and become a rare and undiagnosed family.
I have been blown away by the generosity of strangers over the past few years. The power of love from friends and family helps more than you will...
Stephanie’s Birthday Present. Harlie Valdez is coming home. Day ONE of their next step on their journey.
As Gina sits in Harlie’s hospital room with her parents, Stephanie and Gabe, we talk about what it means to go home today on Stephanie’s birthday. A sign...