Recent Posts
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EoE diagnosed again in our family
Ava and I have now both been diagnosed with EoE, Eosinophilic Esophagitis. Since we do not know what the cause is of my EoE, the doctor ordered a...
Katie Nuffer shares her story with MHE
Hey Everyone, my name is Katie Nuffer. Most people look at me and don’t think that any thing is wrong with me. And as much as I wish...
Megan’s Update on Katie
The past two months have been very tough, to say the least. I have not experienced this much heart ache since 2008, when my father passed away. I...
Hearing the words “Unknown Progressive Disease”
I am now officially very scared. My team of doctors have admitted that they do not know what is happening right now. They called me “a puzzle” yesterday....
Winner – Best Documentary: Szajnuk (Zanik) Family Whole Genome Sequencing Mission
FERNLEIF PRODUCTIONS 2014 BACK IN THE BOX COMPETITION: Winner – Best Documentary – Szajnuk (Zanik) Family Whole Genome Sequencing Mission http://www.fernleif.com/Festival/2014Winners.html
Goodbye 2014!
As I sit at my computer on New Year’s Eve, I realize that I am ready for 2014 to end. Goodbye! See ya! Not looking back. No way....
Waiting for test results during the holiday season
It is not easy waiting for test results during the holiday season. And, it is not easy receiving email alerts from “My Chart” regarding abnormal blood work and/or...
Living with cold intolerance
Living in Park City is a blessing. It is absolutely beautiful. The snow finally came… Unfortunately, it does not make it easy for us to exist outside. A...
Winner! Award of Merit from the Accolade Global Film Competition
Gina Szajnuk (USA), The Szajnuk (Zanik) Family Whole Genome Sequencing Mission, Special Purpose Films, Children /Family Programming
Two Hospitals Completely Disagree on my Diagnosis
The “Top Hospital in the Nation” and my “home hospital” completely disagree on what is going on with me. I had to redo some of the previous tests...