Search results for ‘Harlie ’
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Stephanie Valdez shares some GOOD NEWS about Harlie today!
Stephanie Valdez: “So excited to finally post some good news… Harlie’s first appointment with orthopedic surgeon that placed screws in Harlie’s hip went great. He said it’s still...
Harlie Valdez is home from the hospital
We are happy to hear that Harlie, Stephanie and Gabe are home tonight. However, the road ahead for Harlie and her entire family is going to be a...
Ava Szajnuk and Harlie Valdez: We all said prayers today.
July 12, 2015: Ava and Harlie met last October on the court of the NBA Utah Jazz. We watched this amazing family, the Valezs, in awe of being...
Harlie Valdez is out of surgery. Thank you for your prayers.
Harlie is out of surgery. Long screws are now in Harlie’s hip. We need to pray that the screws do not cause more fractures in her bones. They...
Harlie Valdez falls and fractures her hip. Surgery today. Please pray.
Stephanie texted late last night to let us know that Harlie fell. Unfortunately, she suffered tremendously due to her very fragile bones from all of the medications she...
Harlie Valdez goes home!!!! Best day ever!!!!
Stephanie Valdez: “I never thought this day would come… They are finally releasing us from the hospital!!! No beeping all night, no sleeping on a small couch or...
Update on Harlie Valdez and her new medicine, Tacrolimus.
Stephanie Valdez: “Update on Harlie. After deciding to try the new medicine Tacrolimus, they are struggling to get the dosage right. They want us to be in the...
Stephanie Valdez’s Update on Harlie: New medicine and what a great weekend!
Stephanie Valdez: “Update on Harlie.. We have decided to try a new drug treatment called tacrolimus.. She will start it today along with her other treatments on Mondays...
Stephanie Valdez’s Question re: Harlie: Has anyone had any experience with Cytoxan or Tacrolimus?
Stephanie Valdez: “I just wanted to give everyone an update on Harlie’s MRI. Our rheumatologist came in and talked to us yesterday. He wants us to consider a...
Harlie’s cousin: Keely Valdez’s Article on RUN for her school newspaper
Rare and Undiagnosed Network By Keely Valdez A once healthy child who may have done sports or stayed active, had a great sense of humor, or who was...